Bilateral Acoustic Neurofibromatosis (BAN)
    
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Bilateral Acoustic Neurofibromatosis (BAN)

Definition

Neurofibromatosis 2 (NF2) is a genetic disorder that causes tumors to form on the nerves of the brain and spine (the central nervous system).

See also neurofibromatosis 1 (NF1).

Alternative Names

NF2; Bilateral Acoustic Neurofibromatosis (BAN); Central Bilateral Acoustic NF

Causes

NF2 is inherited, and the main risk factor is having a family history of NF2. Inheritance is autosomal dominant. This means that if one parent has NF2, any child of that parent has a 50-50 chance of having it.

Symptoms

  • Hearing loss
  • Ringing and noises in the ears
  • Balance problems
  • Cataracts at a young age
  • Changes in vision
  • Headaches
  • Facial weakness
  • Coffee-colored marks on the skin

Exams and Tests

Signs include:

  • Brain and spinal tumors
  • Acoustic (related to hearing) tumors
  • Skin tumors

Tests include:

  • Physical examination
  • Medical history
  • MRI
  • Genetic testing

Treatment

Most patients require surgery to remove tumors. Tumors also can be treated with radiation.

Support Groups

For information and support, see www.nf.org

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